On Wednesday June 23, 2010, Barry got a platelet transfusion. His platelet levels were down to 4 (or 4 x 10^9 per liter). Just to give you an idea, the normal platelet range is 150-400 x 10^9 per liter. Also, the results of Barry's bone marrow biopsy (third one after transplant) on June 9th showed that his MRD was at 29.3%. The MRD decreased from 29.7% (second biopsy after transplant) to 29.3% so this is okay. As long as Barry's leukemia doesn't grow, we can keep him off of chemotherapy so that he can get stronger. Then at the six month mark after transplant (October 2010), we can do another bone marrow transplant.
My name is Barry and I was born on April 9th, 2009. I have acute biphenotypic leukemia and I want to educate others about becoming a potential bone marrow donor. I passed away peacefully on Thursday August 5, 2010 at 1:05AM at Lucile Packard Children's Hospital with my mom, dad, and aunt by my side.